MS
Support Groups

MS can make you feel alone. An MS support group can change that.

MS support groups are a way to meet and talk to people who are going through the same things you are. Your MS may be unique to you, but you’re not alone. Whether they’re online or face-to-face, MS support groups provide a place where you can share information and spend time with people who understand what it’s like to live with MS.

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The MS support groups are full of people who are going through the same thing as you, so they understand and can help.

Katie

Living with MS since 2016

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There are so many online forums and support groups available to people living with MS. I joined a bunch of them when I was first diagnosed. I had never known anyone with MS before my own diagnosis, so I wanted to find that community for myself.

Kandis

Living with MS since 2012

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Of course, support groups may not be for everyone, and you shouldn’t feel pressured to join if it’s not really your thing – you can talk to your healthcare team about any issues you are facing and should look to friends and family for support, too.

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I also look to my family and friends for support closer to home. They have played a major role in helping with my MS journey, and I talk to them about anything that’s playing on my mind.

Katie

Living with MS since 2016

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It’s time to meet people and challenge your MS together!

Katie

Living with MS since 2016

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We asked people with MS about their experiences with MS support groups. Read in their own words about how being a part of an MS support group has empowered them to take control of their MS.

Ask your healthcare team for more information about available MS support groups. You can also find some useful links here.

Being diagnosed with MS may leave you feeling alone, and it can be difficult for your doctor, and even your friends and family, to understand. Support groups provide opportunities to meet people with MS who have had the same thoughts and feelings as you. Sharing knowledge and understanding can help you overcome the challenges of MS together.

Your friends and family won’t always know exactly what you’re going through. But try to explain how you’re feeling to help them better understand.

They will always be an important source of support – and will often be welcome to join you at one of the many support groups available.

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For people who have been hesitant about joining a local support group, I can promise you it’s worth it. Feeling the support of others is unparalleled. Take the first step and encourage your family and friends to get involved as well.

Kandis

Living with MS since 2012

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MS support groups are as diverse as the people who have MS.

There is no ‘typical’ MS support group. They take many different shapes and forms, including online forums, face-to-face meetings, and social events. They can include everything from seminars on recent research findings, to nights out, workout groups, coffee mornings, charity bike rides, and events. Anything! And if your group doesn’t have an activity you want, then suggest it and start it yourself.

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Joining a support group was the best decision of my life. Everyone is so nice, open minded, and a lot of fun, and a ‘moaning-mode’ doesn't exist, it's all about exchange and having fun together. It's not only about MS all the time, we are like friends who meet and talk about everything. But of course, you can also ask questions about MS and listen to stories and experiences of people you know and are close to you. I'm even leading my own support group, and it’s so much fun!

Steffi

Steffi

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I’m a member of many different online communities, and I really enjoy it as I get to speak to people from all over the world, comparing stories and sharing thoughts. I’m a member of a face-to-face group, too – there’s a large group of us, and we meet up about twice a year and stay in touch via instant messenger.

Katie

Living with MS since 2016

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1. Feel a sense of belonging and be part of something bigger.

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MS support groups can provide you with a sense of community or simply just provide a place where you can go to talk. I’ve learned so much and found a place to share my problems and be understood.

Katie

Living with MS since 2016

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Partaking in local fundraising events for MS has given me a real sense of community. Seeing so many people congregate in one place for one purpose is overwhelming and inspiring. Not only has it allowed me to meet other people living with MS, but it’s opened my eyes to the massive amount of support we have as well.

Kandis

Living with MS since 2012

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As I’ve grown more involved in the MS community, I can’t help but think I’ve also grown as a person. It motivates me to keep going.

Kandis

Living with MS since 2012

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Being part of a community is hugely important for everyone…to talk about common issues and share experiences.

Conor

Living with MS since 2003

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2. Meet new people and make new friends.  

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Since joining support groups, some amazing people have been brought into my life.

Katie

Living with MS since 2016

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I’m a member of several online communities and have been lucky enough to meet fantastic people with MS at national and international events.

Conor

Living with MS since 2003

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I have developed so many new friendships. After each meeting, we go home feeling stronger and with recharged batteries because we just have such a good time together.

Nicole

Nicole

3. Learn from each other’s experiences and get useful informaton.

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It’s important to exchange experiences. MS is the disease of a thousand faces, and everyone experiences it differently.

Nicole

Nicole

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If you have an issue, someone will have faced a similar one, and they can give advice and help point you in the right direction to take action and deal with it.

Katie

Living with MS since 2016

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I started my own support group in my town with someone else I knew with MS – now about 15 of us meet up frequently. We even have experts attending, like speech therapists or alternative medicine practitioners, which is great!

Nicole

Nicole

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When I was first diagnosed at 21, I was discouraged from joining a support group – I felt so alone about the symptoms I was experiencing, and I feared for my future. It took me over a decade to join a support group. Since joining, I’ve appreciated having people around my age who understand the symptoms I’m experiencing and the complexity of making career, relationship and family plans with MS. It’s been nice to have people other than my neurologist to talk to about worries, medication choices, and ways to manage my symptoms.

Rebecca

Living with MS since 2006

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4. Feel empowered and excited about the future.

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Support groups help me feel motivated to continue to look after myself and my MS. These groups give me a sense of hope, empowerment, and control of my MS – and they can do this for you, too!

Katie

Living with MS since 2016

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I felt empowered discussing my experiences and knowing that this was helping others. I went from feeling hopeless, to feeling like I was a beacon of hope for someone else.

Kandis

Living with MS since 2012

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I would encourage everyone to join support groups and just give them a chance!

Katie

Living with MS since 2016

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Our local groups page has information on MS support groups near you. You can also search online for MS charities and MS support groups, or simply ask your doctor or nurse.

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My MS nurse told me about the society websites to look up. I then joined them on social media and signed up for their newsletters. Their websites and newsletters included information on upcoming events and activities where I could find the ones near me.

Katie

Living with MS since 2016

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Speak to your healthcare team for more information about available MS support groups and find the right type of support group for you!

Also check out our ‘Living with MS’ pages for further support, tips, and advice on how to live the life you want with MS.

More information on getting support with MS.

When it comes to finding support with MS, these articles are just the beginning. You’re not alone.


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